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  1. until
    It’s a night to be supported, to ask questions and share resources, and to be with other parents who get what it’s like to deal with special challenges for their kids. Parents of kids with all types of developmental differences welcome (sensory processing disorder, autism, ADD/ADHD, PDD-NOS, mixed receptive-expressive language disorder, Down syndrome, physical disabilities, medical issues, etc.). Parents/family only, please (no therapists, students or business owners). Going forward our Developmental Differences Support Group meetings will be alternating in person and via zoom. Our March meeting will be in person at Gigi's Play House, 3948 N. Lincoln Chicago, IL 60613, from 7:45-9:30pm.
  2. until
    It’s a night to be supported, to ask questions and share resources, and to be with other parents who get what it’s like to deal with special challenges for their kids. Parents of kids with all types of developmental differences welcome (sensory processing disorder, autism, ADD/ADHD, PDD-NOS, mixed receptive-expressive language disorder, Down syndrome, physical disabilities, medical issues, etc.). Parents/family only, please (no therapists, students or business owners). The Zoom link will be included in your eticket.
  3. until
    It’s a night to be supported, to ask questions and share resources, and to be with other parents who get what it’s like to deal with special challenges for their kids. Parents of kids with all types of developmental differences welcome (sensory processing disorder, autism, ADD/ADHD, PDD-NOS, mixed receptive-expressive language disorder, Down syndrome, physical disabilities, medical issues, etc.). Parents/family only, please (no therapists, students or business owners). Going forward our Developmental Differences Support Group meetings will be alternating in person and via zoom. Our January meeting will be in person at Gigi's Play House, 3948 N. Lincoln Chicago, IL 60613, from 7:45-9:30pm.
  4. As a pediatric physical therapist, something I hear quite often in new assessments with families is that they "knew something wasn't quite right and had questions on it, but were told to wait and see if it was still a problem" at their next pediatrician visit. Many times, things do work themselves out with development for a variety of factors. Unfortunately, it's not every time. If gaining anything from this article, my advice as a physical therapist and as a parent myself is to trust your instincts. YOU know your child best. Early intervention has been statistically proven to shorten overall intervention times as well as improve results across all disciplines with children. The challenge with the “wait and see” recommendation is that earlier in your child's medical care at their primary pediatrician, you are seeing each other every four weeks. By the time you may have concerns, your check-in period is every three months. Three months is a long time in a child's first year of development: it's a quarter of their life! [Related: Preschool, or therapeutic preschool?] So how does a family pursue occupational, physical, or speech therapy for their child? There are a multitude of different ways to access services, which move along their corresponding timelines for each path. Here are some of your options: 1. Call a reputable, outpatient center or home-based service to provide therapy services. Turn around time to services: one to two weeks Look at online reviews, ask for others’ experiences in local parenting groups, access NPN’s referral list — any of these areas could be a good starting point to contact for an assessment for services. Most places will directly call a pediatrician for the prescription to be on file prior to the assessment. In Illinois, you do not need a prescription for physical therapy, as it is a direct-access state. This means that patients can refer themselves and receive ongoing treatment without an initial referral. Reputable outpatient service locations will still gain a referral and share treatment plans and evaluation results with a primary pediatrician, regardless of the state requirement. You can also ask for this to be done! This is the most direct and fastest way to receive services. This can also be the most costly, especially if you still have to meet an insurance deductible or do not have private insurance to access. If you are in a rush to prioritize services, an important question during this process is whether the outpatient center or private-based therapy service site providers are also in network with Illinois's Early Intervention system. (We'll review how to access both services down below.) 2. Call the Illinois Early Intervention program. Turn around time to services: six to 12 weeks, depending on availability Illinois has a robust Early Intervention program offered for children ages 0 to 3. Services included in Early Intervention are speech therapy, occupational therapy, physical therapy, developmental therapy, developmental vision therapy, developmental hearing therapy, feeding therapy, social work, nutrition services, and diagnostic referral services, to name a few. Services are typically provided in home, in a daycare, or via teletherapy, depending on a family's preference. [Related: What to look for in a therapeutic preschool] Families can call the child and family connection facility associated with their home address ZIP code to obtain an assessment and report concerns related to their child's development. Pediatricians or other physicians related to your child's care can also directly refer to the Early Intervention system. To begin Early Intervention services, your pediatrician must agree with and sign off on all recommended services after the assessment. After calling to schedule an assessment, it typically takes two weeks to receive a scheduled assessment. Following the evaluation, recommendations are made and new providers are searched for to provide the recommended frequency of services. This process in finding your child's provider team can at times be lengthy to get set up, depending on availability of clinicians in your area. Despite the issues with timely services, the benefits to using the Early Intervention system are great for families! Monthly family fees are assessed based on number of family members and overall household income. This family fee is set from $0 to $200 max per month. Early Intervention can act as your primary insurance (as in, the only insurance plan that is billed for therapy services), or it can act as your secondary insurance (e.g., the insurance to handle any unpaid amounts after visits are processed by your primary insurance plan). Because of this set up, Early Intervention can provide an extremely affordable and accessible means for therapy services for children up to the age of three. 3. Combination of utilizing private insurance and the Early Intervention system through the state of Illinois. Turn around time: one to two weeks to get started; up to three months to bring on Early Intervention coverage At times, when a problem has been identified, waiting several months for services can feel like a lifetime. This is where a provider that can initially work with your insurance plan, that has providers certified through the Early Intervention program, can work nicely. Think of it as billing just your primary insurance for the first weeks before Early Intervention can "kick in." Early Intervention can then be used primarily as your benefits plan or to help supplement your insurance plan. Finding an initial provider that provides both services is also helpful so that you do not have to get services started and then switch providers to a different facility. Hopefully this has been a useful guide to accessing services and pursuing early intervention for your child. Again, listen to your instincts, pursue help when needed, and don’t rely on “wait and see”: it could prove to take even more time to make gains with this approach.
  5. Join Us For an After-Hours Benefits Webinar on SSI, SSDI, HFS, DHS, PUNS, and more - Understanding the Alphabet Soup of Government Programs and Benefits brought to you by Family Benefit Solutions in partnership with Anixter. This interactive informative session will focus on the who, what, where, and when of the four major government benefits, how working may affect them, how they may change over a lifetime and how to protect them. This is a free, online event. RSVP is required. Please go here to register. This is an external partner event. Please contact the organization directly with any questions or concerns: BGlavaz@anixter.org
  6. NPN Jana

    PlayWorks Therapy, Inc.

    PlayWorks Therapy, Inc. is a pediatric therapy clinic providing a variety of clinical therapies to children ages 0-12 and is conveniently located in the Roscoe Village neighborhood at the Bradley Business Center.
  7. NPN Tareema

    What is ABA Therapy?

    Applied Behavior Analysis (ABA) can be an effective therapy for kids on the autism spectrum. For parents wondering how ABA works and whether it's right for their child, this live session will offer straightforward information and an opportunity to ask questions at the end. Speaker Rose McLean, pediatric physical therapist and owner of Chicago Pediatric Therapy and Wellness Center, will address: - The philosophy behind ABA therapy - Types of behaviors ABA can address - How to incorporate ABA into your child's schedule - How a child's progress is measured - And much more! About the Speaker: Rose McLean has been specializing in pediatrics since 2004. Upon graduating from Northwestern University with her doctorate in physical therapy, she began her career at Cincinnati Children’s Hospital. In the creation of the Chicago Pediatric Therapy & Wellness Center, she not only wanted families to have a center where multi-disciplinary communication and therapist collaboration for each child was a priority, but she also wanted recreational and educational programs available for families to access outside of their one-on-one therapy sessions.
  8. Helpful services and tips to help families find and afford effective autism therapy & supports, such as grants and government programs.
  9. As a parent of a special needs child, I look forward to the periods of platitude. Every developmental stage is an uphill climb that seems to take forever. So when my child hits a plateau and can thrive in an age-appropriate developmental stage, I relish in the peace that comes with it. I have learned to relax during these periods until it’s time for the next developmental growth challenge. Well, during the spring of 2021 when we had finally settled into our “new normal” and were thriving in a pandemic world, BOOM! I started to notice my usual rule-following, kind-hearted son becoming more irritable out of the blue. And when I say "out of the blue," I mean over things that were never an issue for him in the past. He seemed more tired than usual, he was more sensitive to touch, and even though he has a speech delay, he is verbal — but he really did not want to talk at all. [Related: Raising a Black autistic boy in America] My husband, his teachers, and his therapists all saw this dramatic change in him. For weeks, I chalked it up to the time change. He has always had a hard time adjusting to the bi-annual time changes, especially when we spring forward, so I just assumed this particular year was just a bit harder for him. After weeks of dealing with his attitude, I finally spoke to his pediatrician. She referred me to an endocrinologist. After blood tests and an exam, the endocrinologist looked at me and said, “Well mom, the hormone fairy has asked him to the dance, and he has accepted." He is only 11, My baby is growing up, What does this mean? and Oh no, it’s time for the sex talk, were all the thoughts running through my head. I pulled myself together enough to ask her, "What does puberty look like in a child with autism?” She told me it is different for each child; however most will be more sensory-defensive during this time. She asked me to close my eyes and imagine what it would feel like to feel every single hair growing on my body, what would it feel like to feel the lump of an adam’s apple forming in my throat, and to feel all of the aches as the muscles grow and form in my body. She explained that this is what my son is feeling on a magnified level. This completely explained his change in behavior and his new sensitivity. [Related: Tips for your next IEP meeting from a special-ed attorney] Armed with the knowledge of what was happening, my husband and I immediately put a plan of action in place. The first thing we did was communicate this information to his teachers and therapists. This allowed them to make adjustments in their support. It helped him to continue to be successful and get the most out of school and therapy. Second, we talked to him about what was going on with his body. We discussed the physical and the mental changes that were happening. What stood out to me most was that once we assured him everything he was feeling was “normal,” his irritability lessened by 50 percent. I realized the unknown of what was happening was half of the stress he was feeling. We also asked him to tell us what things he thought would help him cope. He said exercise. Lightbulb moment! My son is a swimmer, and pre-pandemic he was in the pool for three 2-hour sessions per week. This gave his body good sensory work out. Since the pandemic he had been only able to do one 45-minute session per week. His body and brain needed a workout to cope and process all the changes that were happening. Since our son had done Tae Kwon Do in the past and enjoyed it, we picked that up twice a week. It took a few weeks, but we finally started seeing our son return to his rule-following, kind-hearted, non-irritable self. Lastly, we told him to come to us with any questions or thoughts he had about what was going in with his body. We told him nothing was off limits. We also prepared ourselves to be ready and open to answer any questions and have uncomfortable conversations. This part is ongoing, and things come up day by day. However, we have built a deeper level of trust that will be helpful as we enter the teen years. What I have learned on this journey is to start researching and talking to your doctors about puberty when your child is 10 years old. Prepare yourself and be open to questions and conversations. Honestly, if puberty was on my radar, I would have had a preparatory conversation with my son at 10 years old. I would have told him in a very clinical way what changes he may see in his body, and to let me know when it starts happening. Trust what you know about your child. If they have sensory issues, prepare for them to feel body changes on a deeper level, and think of activities they enjoy that can help their bodies cope with the feelings. Be patient, give them grace, and assure them that all the strange things they are feeling are normal and okay. Lastly, as a parent of a special needs child, remember our journey is a marathon: Breathe and give yourself a break. You are doing great!
  10. As parents it is hard to imagine our kids as adults, especially if your child is developmentally different. Will they go to college, trade school or get a job? Are there employment opportunities and, if so, what type? Will they be able to live independently? The panelists on this webinar can help you prepare for the many different options for your child so they can live the most fulfilling life possible. PEERS Chicago will discuss their social coaching program for young adults and Urban Autism Solutions will present their residences, transition academy and farm solution program. We will also learn about Elmhurst University's Learning and Success Academy and Anixter Center will discuss their pathway to college and employment programs. Our esteemed panel consists of: Diane Gould, CEO & Owner, PEERS Chicago, Heather Tarczan, Executive Director, Urban Autism Solutions, Tim Ahlberg, Assistant Director of Admissions, Elmhurst University ELSA and Dina Donohue-Chase, Vice President of Growth & Innovation, Anixter Center
  11. Have you noticed a regression in your child—behaviorally, developmentally or socially—since the start of the pandemic? You're far from alone. Join NPN for a webinar on how to detect and manage COVID regression, whether you have a child with special needs or a typically developing child in the crucial development years of 2–5. In this discussion, you will hear from behavioral specialists, speech and language pathologists, occupational therapists, and psychologists about the typical signs that your child may be experiencing developmental regression due to the pandemic. You will also learn about the strategies professionals are using, services that are available, and what activities you can do in the home to combat COVID-19 regression. Our esteemed panel consists of: Dr. Shay McManus, Neuropsychologist, Eyas Landing, Dr. Chrisna M. Perry, PhD, Founder & Director, Comprehensive Learning Services, Lorell Marin, Founder, CEO & Therapist, LEEP Forward, Nicole Cissell, Clinical Director, BGF Children's Therapy, and Jason Wetherbee, Director of Clinical Services & Program Development, EB Pediatric Resources We appreciate our Supporting sponsors, Comprehensive Learning Services and LEEP Forward A special thank you to our Presenting Sponsor, Eyas Landing
  12. NPN Tareema

    Webinar: What Is ABA Therapy?

    until
    Applied Behavior Analysis (ABA) can be an effective therapy for kids on the autism spectrum. For parents wondering how ABA works and whether it's right for their child, this live session will offer straightforward information and an opportunity to ask questions at the end. Speaker Rose McLean, pediatric physical therapist and owner of Chicago Pediatric Therapy and Wellness Center, will address: - The philosophy behind ABA therapy - Types of behaviors ABA can address - How to incorporate ABA into your child's schedule - How a child's progress is measured - And much more! Like all of NPN's developmental differences programming, this webinar is free and open to the public! About the speaker: Rose McLean has been specializing in pediatrics since 2004. Upon graduating from Northwestern University with her doctorate in physical therapy, she began her career at Cincinnati Children’s Hospital. In the creation of the Chicago Pediatric Therapy & Wellness Center, she not only wanted families to have a center where multi-disciplinary communication and therapist collaboration for each child was a priority, but she also wanted recreational and educational programs available for families to access outside of their one-on-one therapy sessions.
  13. Choosing the right preschool for your child can be a daunting task, especially when your child has a developmental difference. You might be wondering if a therapeutic preschool is the best fit for your child. But what is a therapeutic preschool? What does it provide that another preschool doesn't? What should you look for in a therapeutic preschool to know that it is right for your family? In this session you will learn what makes a preschool therapeutic, how traditional therapy is integrated in the preschool environment, the benefits of a therapeutic preschool experience and what questions to ask to make sure you find the best fit for your family. You will walk away from this discussion understanding: 1. How therapeutic preschools differ from non-therapeutic preschools 2. How parents can evaluate and compare therapeutic preschools 3. What to look for when touring a therapeutic preschool 4. What to expect when transitioning to traditional schools after preschool Our esteemed panel consists of: Lorell Marin, Founder and CEO, LEEP Forward, Dr. Lori G. Tall, Executive Director, Black Bear Academy, Dr. Erin Harvey, Clinic Director and Occupational Therapist, Blue Bird Day, Kimberly Shlaes, Director of Therapeutic Preschool Programing, PlayWorks Prep Therapeutic Preschool, Dr. Connie Weil, Clinical Psychologist, Tuesday's Child We appreciate our Supporting sponsors, PlayWorks Prep Therapeutic Preschool, and Tuesday's Child A special thank you to our Presenting sponsors, LEEP Forward, Black Bear Academy, and Blue Bird Day

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