It was an early Sunday morning in March 2012. I did not get much sleep the night before, because I was 4 months pregnant with our second child, and our first child, Luke, had just received a diagnosis of autism and epilepsy. To say that I was stressed would be an understatement.
After speaking to my nursing pediatrician, it was recommended that I join a few community groups for support and resources. It was in this search that I found out about a resource fair that was created for parents just like me - parents that were overwhelmed, stressed, and on the hunt for resources and community. I was determined to provide my children with the best options available and realized that attending this fair might help me do just that. Overwhelmed with loneliness, desperation, and fear of our new normal we went to our first NPN Developmental Differences Resource Fair (DDRF) that morning.
If I close my eyes right now, I can remember the moment I walked into my first NPN Developmental Differences Resources Fair. I can remember looking around and seeing so many resources and so many families, like mine, all in one room. Instantly, my stress levels decreased and I breathed a sigh of relief as the feeling of hope, which had escaped me for several months, came flooding back. I was able to connect with so many resources at once! The biggest takeaway was the connections with the other families I met; just knowing I was not alone gave me so much encouragement.
The following year, I returned for my second DDRF. This time I was more confident, I knew exactly which resources I needed, and I was prepared with questions to ask. My biggest takeaway that second year at DDRF was that there is literally a resource for everything. Education, extra-curricular activities, therapies, government benefits, financial planning, whatever it is - there is a resource for it. I just had no idea where to look to find all of the information that I needed and had been too exhausted as a new mom to seek out the resources on my own.
Fast forward to today and my son is now 12 years old and thriving! I have to say that being an advocate for my son and utilizing the resources that I found at NPN’s DDRF have made all the difference. I am proud to report that we have been able to change the trajectory of our son’s progress for the better. One of the best decisions I ever made was to pull my exhausted, desperate, hopeless, and stressed self out of bed that morning in March 2012, and take the first steps towards building our community and support network.