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  1. As a parent of a special needs child, I look forward to the periods of platitude. Every developmental stage is an uphill climb that seems to take forever. So when my child hits a plateau and can thrive in an age-appropriate developmental stage, I relish in the peace that comes with it. I have learned to relax during these periods until it’s time for the next developmental growth challenge. Well, during the spring of 2021 when we had finally settled into our “new normal” and were thriving in a pandemic world, BOOM! I started to notice my usual rule-following, kind-hearted son becoming more irritable out of the blue. And when I say "out of the blue," I mean over things that were never an issue for him in the past. He seemed more tired than usual, he was more sensitive to touch, and even though he has a speech delay, he is verbal — but he really did not want to talk at all. [Related: Raising a Black autistic boy in America] My husband, his teachers, and his therapists all saw this dramatic change in him. For weeks, I chalked it up to the time change. He has always had a hard time adjusting to the bi-annual time changes, especially when we spring forward, so I just assumed this particular year was just a bit harder for him. After weeks of dealing with his attitude, I finally spoke to his pediatrician. She referred me to an endocrinologist. After blood tests and an exam, the endocrinologist looked at me and said, “Well mom, the hormone fairy has asked him to the dance, and he has accepted." He is only 11, My baby is growing up, What does this mean? and Oh no, it’s time for the sex talk, were all the thoughts running through my head. I pulled myself together enough to ask her, "What does puberty look like in a child with autism?” She told me it is different for each child; however most will be more sensory-defensive during this time. She asked me to close my eyes and imagine what it would feel like to feel every single hair growing on my body, what would it feel like to feel the lump of an adam’s apple forming in my throat, and to feel all of the aches as the muscles grow and form in my body. She explained that this is what my son is feeling on a magnified level. This completely explained his change in behavior and his new sensitivity. [Related: Tips for your next IEP meeting from a special-ed attorney] Armed with the knowledge of what was happening, my husband and I immediately put a plan of action in place. The first thing we did was communicate this information to his teachers and therapists. This allowed them to make adjustments in their support. It helped him to continue to be successful and get the most out of school and therapy. Second, we talked to him about what was going on with his body. We discussed the physical and the mental changes that were happening. What stood out to me most was that once we assured him everything he was feeling was “normal,” his irritability lessened by 50 percent. I realized the unknown of what was happening was half of the stress he was feeling. We also asked him to tell us what things he thought would help him cope. He said exercise. Lightbulb moment! My son is a swimmer, and pre-pandemic he was in the pool for three 2-hour sessions per week. This gave his body good sensory work out. Since the pandemic he had been only able to do one 45-minute session per week. His body and brain needed a workout to cope and process all the changes that were happening. Since our son had done Tae Kwon Do in the past and enjoyed it, we picked that up twice a week. It took a few weeks, but we finally started seeing our son return to his rule-following, kind-hearted, non-irritable self. Lastly, we told him to come to us with any questions or thoughts he had about what was going in with his body. We told him nothing was off limits. We also prepared ourselves to be ready and open to answer any questions and have uncomfortable conversations. This part is ongoing, and things come up day by day. However, we have built a deeper level of trust that will be helpful as we enter the teen years. What I have learned on this journey is to start researching and talking to your doctors about puberty when your child is 10 years old. Prepare yourself and be open to questions and conversations. Honestly, if puberty was on my radar, I would have had a preparatory conversation with my son at 10 years old. I would have told him in a very clinical way what changes he may see in his body, and to let me know when it starts happening. Trust what you know about your child. If they have sensory issues, prepare for them to feel body changes on a deeper level, and think of activities they enjoy that can help their bodies cope with the feelings. Be patient, give them grace, and assure them that all the strange things they are feeling are normal and okay. Lastly, as a parent of a special needs child, remember our journey is a marathon: Breathe and give yourself a break. You are doing great!
  2. As parents it is hard to imagine our kids as adults, especially if your child is developmentally different. Will they go to college, trade school or get a job? Are there employment opportunities and, if so, what type? Will they be able to live independently? The panelists on this webinar can help you prepare for the many different options for your child so they can live the most fulfilling life possible. PEERS Chicago will discuss their social coaching program for young adults and Urban Autism Solutions will present their residences, transition academy and farm solution program. We will also learn about Elmhurst University's Learning and Success Academy and Anixter Center will discuss their pathway to college and employment programs. Our esteemed panel consists of: Diane Gould, CEO & Owner, PEERS Chicago, Heather Tarczan, Executive Director, Urban Autism Solutions, Tim Ahlberg, Assistant Director of Admissions, Elmhurst University ELSA and Dina Donohue-Chase, Vice President of Growth & Innovation, Anixter Center
  3. until
    We're meeting in person this month! Woo-hoo! However, masks are required. It’s a night to be supported, to ask questions and share resources, and to be with other parents who get what it’s like to deal with special challenges for their kids. Parents of kids with all types of developmental differences welcome (sensory processing disorder, autism, ADD/ADHD, PDD-NOS, mixed receptive-expressive language disorder, Down syndrome, physical disabilities, medical issues, etc.). Parents/family only, please (no therapists, students or business owners). Feel free to bring drinks or snacks you'd like to share!
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    Get the support and resources your child needs at our IN-PERSON fair NPN will follow all IDPH and City of Chicago COVID guidelines. Check back for the latest updates. If your child has a physical, developmental or intellectual challenge, NPN's 11th Annual Developmental Differences Resource Fair can help. Our free fair puts you in touch with school options, therapy providers and more resources that will encourage your child to reach his or her highest potential. Your child does not need to have a diagnosis for you to benefit from the resources offered at this fair. Parents with concerns about their child's development due to COVID regression will find help here. Parents can chat with speech, occupational, physical and ABA therapy providers; schools; fun extracurricular options; and more at the exhibitor booths. Plus, get advice and strategies you can use immediately at free expert-led sessions. Exhibit Hall Hours 1:00 - 4:00pm List of Exhibitors Sessions - These in-person sessions will be recorded. RSVP today to receive a link to the live recordings after the event. 12:00 - 1:00pm IEP Questions & Answers with Mo Buti Mo Buti M.Ed-BD, M.Ed-ADMIN, QIDP, is an advocate and instructional expert who is devoted to supporting individuals and families affected by autism and other disabilities. Providing guidance and support to navigate the school district’s complex systems, she assists parents with every stage of the IEP process. This session will start with a short presentation from Mo, and then open up to questions from the audience. Prior to attending this session, we strongly encourage parents to watch our previously recorded session, IEP 101. Find more free IEP-related sessions in NPN's Video Library. One attendee at this session will win a free IEP evaluation session with Mo! Must be present to win. 3:15 - 3:45pm Paying for Services through Grants and Government Programs Kimi Matsumura is the founder and CEO of Chicago Autism Network, a 501(c)(3) nonprofit organization dedicated to helping families find and afford effective autism therapy and supports. Kimi will speak about Health Insurance Premium Payment grants (HIPP), Priority of Urgency of Need for Services (PUNS), Supplemental Security Insurance for Children (SSI), local private grants, national private grants, and Medicaid. Attendees at this session will be able to sign up to receive Kimi's detailed slides to reference after the event. 4:00 - 5:00pm From Recreation to Competition: Enrichment Opportunities for Your Child Chicago has so many enrichment opportunities for your child and in this session you will hear from some of the best. Learn how your child can become a competitive or performing participant, or simply have fun. Our esteemed presenters are: Sam Mauceri, Director of Education & Access Programs, Chicago Children's Theatre Blair Sarkiss, Master Instructor, HMD Academy Chicago Tae Kwon Do Eileen Guinane, Special Olympics Administrator, Chicago Park District Special Recreation and Special Olympics Catherine Attfield, Studio Manager, Intrigue Dance & Performance Arts Center John Fitzpatrick, Owner and Head Coach, Chicago Blue Dolphins Laura Fillenwarth, Executive Director, Kids Enjoy Exercise Now (KEEN) Chicago This panel is presented to you by Chicago Children's Theatre and HMD Academy Chicago Tae Kwon Do MUST-KNOW INFO When: Saturday, May 7 12pm–5pm (exhibit hall hours are 1:00 - 4:00) Where: UIC Student Center East, 750 S. Halsted St., Chicago Who: Open to the public! Registration required. This event is designed for adults but we understand that arranging childcare can be difficult. Parents attending with children will not be turned away. Cost: FREE. $25 donation recommended. Donate here. NPN is a 501(c)(3) non-profit organization. We rely on your financial support to bring free resources like this to Chicago families. Covid precautions: NPN will follow all IDPH and City of Chicago Covid guidelines. As the guidelines change periodically, check back for updates. Interested in exhibiting or advertising opportunities? Find out more HERE. Questions? Email Events Manager Elizabeth Gourio at egourio@npnparents.org. By registering for this event, you agree that NPN may share your name and email address with our presenting sponsors.
  5. Have you noticed a regression in your child—behaviorally, developmentally or socially—since the start of the pandemic? You're far from alone. Join NPN for a webinar on how to detect and manage COVID regression, whether you have a child with special needs or a typically developing child in the crucial development years of 2–5. In this discussion, you will hear from behavioral specialists, speech and language pathologists, occupational therapists, and psychologists about the typical signs that your child may be experiencing developmental regression due to the pandemic. You will also learn about the strategies professionals are using, services that are available, and what activities you can do in the home to combat COVID-19 regression. Our esteemed panel consists of: Dr. Shay McManus, Neuropsychologist, Eyas Landing, Dr. Chrisna M. Perry, PhD, Founder & Director, Comprehensive Learning Services, Lorell Marin, Founder, CEO & Therapist, LEEP Forward, Nicole Cissell, Clinical Director, BGF Children's Therapy, and Jason Wetherbee, Director of Clinical Services & Program Development, EB Pediatric Resources We appreciate our Supporting sponsors, Comprehensive Learning Services and LEEP Forward A special thank you to our Presenting Sponsor, Eyas Landing
  6. until
    Have you noticed a regression in your child—behaviorally, developmentally or socially—since the start of the pandemic? You're far from alone. Join NPN for a webinar on how to detect and manage COVID regression, whether you have a child with special needs or a typically developing child in the crucial development years of 2–5. In this discussion, you will hear from behavioral specialists, speech and language pathologists, occupational therapists, and psychologists about the typical signs that your child may be experiencing developmental regression due to the pandemic. You will also learn about the strategies professionals are using, services that are available, and what activities you can do in the home to combat COVID-19 regression. Our esteemed panel consists of: Dr. Shay McManus, Neuropsychologist, Eyas Landing Dr. Chrisna M. Perry, PhD, Founder & Director, Comprehensive Learning Services Lorell Marin, Founder, CEO & Therapist, LEEP Forward Nicole Cissell, Clinical Director, BGF Children's Therapy Jason Wetherbee, Director of Clinical Services & Program Development, EB Pediatric Resources Special thanks to our Presenting Sponsor, Eyas Landing Thank you to our Supporting Sponsors, Comprehensive Learning Services and LEEP Forward By registering for this event, you agree that NPN may share your name and email address with our presenting sponsors.
  7. until
    As parents it is hard to imagine our kids as adults, especially if your child is developmentally different. Will they go to college, trade school or get a job? Are there employment opportunities and, if so, what type? Will they be able to live independently? The panelists on this webinar can help you prepare for the many different options for your child so they can live the most fulfilling life possible. PEERS Chicago will discuss their social coaching program for young adults and Urban Autism Solutions will present their residences, transition academy and farm solution program. We will also learn about Elmhurst University's Learning and Success Academy and Anixter Center will discuss their pathway to college and employment programs. Our esteemed panel consists of: Diane Gould, CEO and Owner, PEERS Chicago Heather Tarczan, Executive Director, Urban Autism Solutions Tim Ahlberg, Assistant Director of Admissions, Elmhurst University ELSA Dina Donohue-Chase, Vice President of Growth & Innovation, Anixter Center
  8. Choosing the right preschool for your child can be a daunting task, especially when your child has a developmental difference. You might be wondering if a therapeutic preschool is the best fit for your child. But what is a therapeutic preschool? What does it provide that another preschool doesn't? What should you look for in a therapeutic preschool to know that it is right for your family? In this session you will learn what makes a preschool therapeutic, how traditional therapy is integrated in the preschool environment, the benefits of a therapeutic preschool experience and what questions to ask to make sure you find the best fit for your family. You will walk away from this discussion understanding: 1. How therapeutic preschools differ from non-therapeutic preschools 2. How parents can evaluate and compare therapeutic preschools 3. What to look for when touring a therapeutic preschool 4. What to expect when transitioning to traditional schools after preschool Our esteemed panel consists of: Lorell Marin, Founder and CEO, LEEP Forward, Dr. Lori G. Tall, Executive Director, Black Bear Academy, Dr. Erin Harvey, Clinic Director and Occupational Therapist, Blue Bird Day, Kimberly Shlaes, Director of Therapeutic Preschool Programing, PlayWorks Prep Therapeutic Preschool, Dr. Connie Weil, Clinical Psychologist, Tuesday's Child We appreciate our Supporting sponsors, PlayWorks Prep Therapeutic Preschool, and Tuesday's Child A special thank you to our Presenting sponsors, LEEP Forward, Black Bear Academy, and Blue Bird Day
  9. until
    Choosing the right preschool for your child can be a daunting task, especially when your child has a developmental difference. You might be wondering if a therapeutic preschool is the best fit for your child. But what is a therapeutic preschool? What does it provide that another preschool doesn't? What should you look for in a therapeutic preschool to know that it is right for your family? In this session you will learn what makes a preschool therapeutic, how traditional therapy is integrated in the preschool environment, the benefits of a therapeutic preschool experience and what questions to ask to make sure you find the best fit for your family. There will be time for Q&A at the end! You will walk away from this discussion understanding: 1. How therapeutic preschools differ from non-therapeutic preschools 2. How parents can evaluate and compare therapeutic preschools 3. What to look for when touring a therapeutic preschool 4. What to expect when transitioning to traditional schools after preschool Our esteemed panel consists of: Lorell Marin, Founder and CEO, LEEP Forward Dr. Lori G. Tall, Executive Director, Black Bear Academy Dr. Erin Harvey, Clinic Director and Occupational Therapist, Blue Bird Day Kimberly Shlaes, Director of Therapeutic Preschool Programing, PlayWorks Prep Therapeutic Preschool Dr. Connie Weil, Clinical Psychologist, Tuesday's Child Thank you to our Presenting Sponsors: LEEP Forward Black Bear Academy Blue Bird Day Thank you to our Supporting Sponsors: PlayWorks Prep Therapeutic Preschool and Tuesday's Child By registering for this event, you agree that NPN may share your name and email address with our presenting sponsors.
  10. My husband and I had no intention of moving. I am a Realtor and what I have in my condo, my block, and my neighborhood is golden! For us, we were settled. Then, COVID hit. (Insert eye roll.) After realizing it was time for more space, I started my strategic timeline. My oldest is diagnosed with autism and before COVID, he made great strides to be more flexible. However, when COVID hit, his entire world stopped. All the anxiety around everyday changes came crashing back. In some ways it is worse than before. With that in mind, I had to take a step back and listen to some of my own advice, which is usually given to my real estate clients who have special needs children. Considering this, COVID has raised a little anxiety in all of us so change is hard for everyone right now, especially children, and especially children with special needs. Your current home is their constant in an ever-changing world. Your current home is a place of safety and tranquility in a world that seems, at times, upside down. So this is a big change and needs to be approached with care. As a Realtor and mother of a special needs son, here are some tips I have told my clients. Start a casual conversation around the idea of a new space. Perhaps ask, “Wouldn't it be nice to have a basement so you guys have more space to play?” Or ask, “If you could have your own room, how would you decorate it?” Use whatever narrative that is personal to your situation. This plants a seed, so when you bring up the subject in the future, it is not a surprise. [Related: Chicago venues that cater to kids with special needs] If you can, give your child(ren) a voice in the process. Ask them to design what their new home may look like. Ask them to choose three neighborhoods they would like to live in and why. This will allow your children to take some ownership in the process. If you already know the areas you want to move to, consider putting shallow roots in those areas. Personally, my family is in this part of the process. My husband and I have discussed the three neighborhoods we would move to. Two out of the three neighborhoods are new for our family. So, we have switched some of our extracurricular activities into the two new neighborhoods we are considering. Weekly, we choose a different restaurant to patronize in the new neighborhoods. This is a natural, no-pressure way to explore the neighborhoods, and allow your kids to get to know the potential new neighborhoods. We also signed our kids up for activities at the park district in the new neighborhoods. This is a natural way to make connections with kids in the neighborhood. [Related: Back-to-school prep tips for parents of kids with special needs] Create a social story for each part of the entire process. This will be like a chapter-book social story, for which each "chapter" (e.g., "highlights" on Instagram) is a different part of the moving process. If your current home is to be put on the market, create a chapter around staging and showing your home. Create a chapter on packing up your current home; create a chapter documenting any construction or repairs needed in your current or new home before it can be placed on the market. Finally, create a chapter for the actual move day(s) to the new home. Really think through each step and create chapters in the moving "story" that your child can watch and re-watch as they wish. When you are under contract on a property and close to closing, ask your Realtor to set up a time for you to allow your special needs child to do a “sensory walk through.” I have done this for my clients and usually ask for a two hour block of time. This allows my clients to walk their child through their normal ADLs in the new space. Let them open the cabinet where their favorite snack will be. Let them fill up their water bottle from the refrigerator. Let them touch the walls, turn on the lights, check out the closet in their new bedroom. In their new bathroom, turn on the lights, the vent, the shower, and flush the toilet to let your child feel the water pressure and hear the noise level of the flush and vent. Whatever is an important or part of your child’s everyday routine, take the time to role play and let them feel the space. Does this mean that the buying and selling process may take longer? Yes it may. The suggestions above may or may not work for your special needs child, as every child is different. The fact of the matter is that moving is a major change that is hard for everyone, and if you have special needs child, you may need to take a step back to help support them through this change.
  11. until
    It’s a night to be supported, to ask questions and share resources, and to be with other parents who get what it’s like to deal with special challenges for their kids. Parents of kids with all types of developmental differences welcome (sensory processing disorder, autism, ADD/ADHD, PDD-NOS, mixed receptive-expressive language disorder, Down syndrome, physical disabilities, medical issues, etc.). Parents/family only, please (no therapists, students or business owners). The Zoom link will be sent out about 2 hours before the meeting.
  12. until
    It’s a night to be supported, to ask questions and share resources, and to be with other parents who get what it’s like to deal with special challenges for their kids. Parents of kids with all types of developmental differences welcome (sensory processing disorder, autism, ADD/ADHD, PDD-NOS, mixed receptive-expressive language disorder, Down syndrome, physical disabilities, medical issues, etc.). Parents/family only, please (no therapists, students or business owners). The Zoom link will be sent out about 2 hours before the meeting.
  13. until
    It’s a night to be supported, to ask questions and share resources, and to be with other parents who get what it’s like to deal with special challenges for their kids. Parents of kids with all types of developmental differences welcome (sensory processing disorder, autism, ADD/ADHD, PDD-NOS, mixed receptive-expressive language disorder, Down syndrome, physical disabilities, medical issues, etc.). Parents/family only, please (no therapists, students or business owners). The Zoom link will be sent out about 2 hours before the meeting.
  14. until
    It’s a night to be supported, to ask questions and share resources, and to be with other parents who get what it’s like to deal with special challenges for their kids. Parents of kids with all types of developmental differences welcome (sensory processing disorder, autism, ADD/ADHD, PDD-NOS, mixed receptive-expressive language disorder, Down syndrome, physical disabilities, medical issues, etc.). Parents/family only, please (no therapists, students or business owners). The Zoom link will be sent out about 2 hours before the meeting.
  15. until
    It’s a night to be supported, to ask questions and share resources, and to be with other parents who get what it’s like to deal with special challenges for their kids. Parents of kids with all types of developmental differences welcome (sensory processing disorder, autism, ADD/ADHD, PDD-NOS, mixed receptive-expressive language disorder, Down syndrome, physical disabilities, medical issues, etc.). Parents/family only, please (no therapists, students or business owners). The Zoom link will be sent out about 2 hours before the meeting.
  16. until
    It’s a night to be supported, to ask questions and share resources, and to be with other parents who get what it’s like to deal with special challenges for their kids. Parents of kids with all types of developmental differences welcome (sensory processing disorder, autism, ADD/ADHD, PDD-NOS, mixed receptive-expressive language disorder, Down syndrome, physical disabilities, medical issues, etc.). Parents/family only, please (no therapists, students or business owners). The Zoom link will be sent out about 2 hours before the meeting.
  17. until
    It’s a night to be supported, to ask questions and share resources, and to be with other parents who get what it’s like to deal with special challenges for their kids. Parents of kids with all types of developmental differences welcome (sensory processing disorder, autism, ADD/ADHD, PDD-NOS, mixed receptive-expressive language disorder, Down syndrome, physical disabilities, medical issues, etc.). Parents/family only, please (no therapists, students or business owners). The Zoom link will be sent out about 2 hours before the meeting.
  18. until
    Grab a warm beverage or sweet treat and join The Theraplay Clinic staff for an opportunity to connect with other parents, share informal mutual support, and discuss parenting challenges and strategies from a Theraplay perspective. This FREE event meets via Zoom on the third Thursday of every month through March 17, 2022 (7PM to 8PM CST). RSVP required. Please go here to register. This is an external partner event. Please contact the organization directly with any questions or concerns: clinic@theraplay.org
  19. until
    It’s a night to be supported, to ask questions and share resources, and to be with other parents who get what it’s like to deal with special challenges for their kids. Parents of kids with all types of developmental differences welcome (sensory processing disorder, autism, ADD/ADHD, PDD-NOS, mixed receptive-expressive language disorder, Down syndrome, physical disabilities, medical issues, etc.). Parents/family only, please (no therapists, students or business owners). 👉 This month's meeting will feature a special topic! Feel free to discuss this topic or just talk about what’s on your mind as usual. October’s discussion topic is Developmental Differences and Extended Families: how having a child(ren) with special needs has affected our relationship with our (usually well-meaning😏) extended family members. The Zoom link will be sent out about 2 hours before the meeting.

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